|Organisation:||Fragile X Society|
|Closing date:||21st August 2019 at 5pm|
|Salary:||£32,000 per year|
|Job type:||Permanent, Full-time|
About the Role
The new Managing Director will work with the Board, staff and volunteers to achieve the aims of the organisation. A key aspect of the role will be Fundraising, as we rely on grants and donations for our operational budget. Further details on the work of the Fragile X Society can be found on our website and social media.
- To oversee Financial Reporting, Fundraising, Communications and Staff for the Fragile X Society, in accordance with our aims as set out in the policies and long-term strategy agreed by the Board of Directors.
- To work with the Board of Directors to increase awareness of Fragile X in order to improve the lives of those with a diagnosis of Fragile X and associated conditions.
- To increase engagement with the membership in order to be responsive to their needs.
About the Organisation
The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. The charity has now grown to consist of a team of dedicated employees and volunteers, supporting thousands of individuals and families.
Our vision is a world where people living with Fragile X are:
- Valued, included and have their individual needs met - and that Fragile X is recognised and understood by professionals and the public.
- Not alone - that they have access to an active community of people who understand.
- Empowered - through evidence-based knowledge about Fragile X.
Due to service’s and society’s attitudes, a lack of awareness, and features caused by the condition, people living with Fragile X and their families face wide-ranging challenges. Families regularly tell us that generic supports and services do not understand their needs adequately, or that they felt lost in broader organisations relating to autism or learning disability. We are working to change this.
Knowledge and Experience
It is essential that the post holder have:
- Experience of effective fundraising within the non-profit and charity sector
- Skills in financial management including budget control and reporting
- Experience of supporting or advocating for those with disabilities or additional needs
Specialised knowledge and experience in any of the following areas would be an advantage:
- Fragile X Syndrome
- Genetic conditions
- Learning Disability
- Excellent communication skills for this outward-facing role.
- Strong leadership skills.
- The ability to work effectively towards strategic service goals and deadlines.
- Structured and methodical approach to problem solving.
- Ability to prioritise and schedule assigned workloads in the face of conflicting demands.
- A minimum of five GCSEs (grade C or above) essential, including Maths and English is required, with A-levels and/or degree desirable.
- Full driving license useful but not essential.